A Personal Parkinsons Story

Parkinsons disease affects the nerve cells in your brain that produce dopamine. To the outside world when you hear about Parkinson you think of nothing more than tremors.

When in reality those who suffer from the disease, suffer from so much more under the surface than simply tremors alone. Symptoms range anywhere from anxiety, bladder issues, cognitive issues, insomnia, slowed movements, speech clusters and even depression. Its like a wave of underlying symptoms that just cripples one not only physically but their spirit as well. Its a disease that not only grips the affected with fear and guilt but difficult doesn’t even begin to describe how it feels for the family and friends caring for their loved ones affected.

One of my earliest and fondest memories is of bedtime cuddles with my granny. She was a champion cuddler. I would even say it was her ‘thing’ She would cuddle me so tight & we would have heartfelt late night talks about life and such way into the wee hours of the night. I will never forget her cuddling me one night and telling me “how one day I was going to grow up & fall in love & have a family of my own & then cuddle them.” She was a romantic one that granny of mine. I equally have fond memories of my Grandaddy who was the tough hardworking guy from Nashville TN. I remember him being the only one interested to talk to me about stories like the Bell Witch from Adams Tennessee and how he used to play on the Bell farm and the cave on the property where much activity was noted. I always thought of him as such a beautiful man who was the tall tough southern guy who could also be sensitive, loving, and a caring family man. 

Unfortunately, both of my beautiful grandparents suffered from Parkinsons. My grandfather passed away May of 2017 and my Granny recently passed away this past October.

Just like with cancer there are many different types of the Parkinsons disease you or your loved one could be suffering from. Just like with cancer, finding the specific type of this disease is key to finding more effective treatment options and could eventually prove effective in how to find a cure all together.

Below I included my favorite sites for further information on not only the horrible disease but the latest news in treatment options and in how close we are getting to finding a cure overall.

https://parkinson.org

https://www.cureparkinsons.org.uk

Namaste!

What Yoga Means to Me

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Yoga is currently an extremely popular exercise fad. Yoga for me, and many others however means so much more than some trendy exercise activity to look cool. In fact, in full disclosure, I rarely look half as glamorous as the talented insta yogi’s. The thing is, that Yoga is not meant to be something you do to make you appear better than others. It’s not about being more “hip” and “sophisticated” than others, and it certainly should be seen as so much more than a trendy fad.

Yoga is about promoting and nurturing not only physical heath  but mental health most importantly. As previously stated I rarely look cool doing my yoga but I still practice it almost daily. That’s with small children dripping off of me even lol. That is what embracing the realities of life is all about however. There will always be interruptions throughout the day and life. For me though, if I can focus just a little time in my morning to truly concentrate and focus on a little bit of structure, strength and balance in my practice I feel it spill over into adding structure, strength and balance into my overall day and ultimately my life.

I simply do it  bc it sets me in a better state of mind. It eases my anxiety without me having to take medicine, it energizes me, gives me more patience which in turn makes me a better mother. It is a moment I can be fully emerged in myself & my connection to the universe.

Migrains

I must have been about 12 years old when I was walking through a department store with my mother and all of a sudden I started to see auras. I could barely see at all to be honest. I told my mother & she knew immediately what I was experiencing. Migraines are typically genetically inherited and my mother herself had suffered many years from the  from them. Hers however, would last for days.

I had my mother there to help me through the thick of it but that didn’t make it one bit easier to cope with. I would remember being at school or baby sitting and knew when those auras hit me that I had about 10 min to get to a dark and cool spot to suffer through the worst of it. Like I said about 10 min after the auras, they would stop. Once my vision would resume to normal, about 5 min later is when the pain would strike my head like a bowling ball hitting the pins. They only way I can describe it is as if I had a metal rod shooting from my eye socket out the back of my head. My neck becomes so unbelievably tense and the nausea which is probably the worst for me, would be unbearable. With a Migraine typically the only way to get past it is to rest…. There is absolutely no resting with that out of this world nausea however. I mean I had two children and could still vouch for the fact it is nothing in comparison to when I get sick from a migraine. I would forcibly make myself throw up during this hellish experience just to get rid of some of the pain in my head in hopes to get some sleep so that I could fully recover.

After about 5 hours or so I would be out of the woods and in the euphoric postdrome stage. Absolutely giddy to finally be pain-free. I am one of the lucky sufferers though… Some can suffer this for anywhere from 4-72 hours and have chronic migraines attacks through their daily lives. I had one friend who had to constantly be on medication to avoid daily suffering, and another woman who had to modify her entire families diet plan, because if she so much as even touched the food that triggered her migraine she would be out. I myself do not get them as chronically as some and mine seem to only be triggered from extreme hormonal changes ie menstrual cycles, birth control, when I was pregnant, right after I had my children ect. Many other triggers however can include ;

  • Food Additives
  • Stress
  • Sensory stimuli
  • Changes to sleep factors
  • Physical factors

I just wanted to touch on this subject a little bit to draw as much awareness as possible. For there seems to so be many misconceptions about Migraines. Everything from “they are just really bad headaches” to the belief that “migraines are actually your fault”. When in fact migraines are debilitating, unpredictable, and above all else terrifying.

We should most certainly not only bring awareness to this disorder, but as well have tolerance.Make it a priority to educate yourselves on the facts of Migraines. I hope one day we can find a way to alleviate all suffers of migraines forever, and I most certainly pray every day that my girls do not get this horrible condition themselves. Until that day however I will continue to bring as much awareness as I can and pray for a release of the pain from the millions of suffers worldwide. Namaste!